The DMD Portal

Expert information on Duchenne Muscular Dystrophy provided by leading experts in Neurology, Cardiology, Respiratory, Physyiotherapy, Genetics, in fact all disciplines relating to best practice, evidence based information available.

Muscular Dystrophy Australia (MDA) has long been recognised for its role in providing information and advice in support of the Australian MD Community. That information and advice is targeted directly at the individual, supporting carers, clinical and paramedical service providers including the school and workplace.

A need has been identified to establish a portal for information on Duchenne Muscular Dystrophy (DMD) based on best practice and best evidence that addresses the medical, paramedical and psychosocial care of a child with DMD from birth to adulthood.  This capability will provide in one place information on genetics, treatments and current research, linking experts in the various fields so they can easily access this information. In addition, the DMD Portal – MD-Net provides a dedicated network where information exchange can further enhance service delivery and provide best practice support.  

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